Tuesday, August 20, 2013

Observations of a Toddler’s Grief

Grief and loss is a difficult concept for any age, but for children, there is also the sense that they don’t understand the finality of it, especially younger children.  The loss of a sibling, parent, grandparent, friend; it can be that much more confusing for them because they don’t understand the absence as adults do for what it is and many times cannot express the deep-set pain that is caused by that loss.

 

When our son died unexpectedly at just over six and a half months of age, we knew that it would be hard on his older sister (who was two and a half years old at the time), but we found it even more difficult to explain to others why she was behaving in such a way.  Being twenty-three months apart in age, they bonded quickly.  Their first meeting, our daughter didn’t seem to understand what exactly we were trying to present to her with this blanket swaddled bundle, but she handled being a big sister very well, wanting to constantly help with the baby, and even taking on caretaking roles with her animals or dolls, wanting to feed them or change diapers.  His nickname (Atti) was one of the few things she said clearly (because she was choosing not to speak more often than not) and many times he wouldn’t want my husband nor I, but instead he’d be crying for her attention and she’d always know what he wanted.

 

One of the first behaviors we noticed, as it was the first to happen, was her slowly understanding that the babe her father held was her brother.  The two days he’d been on life support and given medications as his organs failed had made him near unrecognizable.  It was how we had laid his beloved toy upon his chest that finally made her realize, as she reached out to touch his head that last time.  She didn’t understand our tears then, but I held her, and she looked up at me before looking at her baby brother, as we told her it was time to say goodbye.  We’d had her out of the room as he passed away, but it seemed wrong to not let her say goodbye.

 

She didn’t understand why we left him at the hospital.  We’d stayed the whole time he was there, but she’d slept outside of the hospital, so to suddenly have us with her again, but not her brother, was confusing.  I found myself carrying the animal given to Atti by the staff of the hospital and suffering bouts of uncontrollable sobbing as I held that bear close.  She’d been given a matching bear (as it was part of a sibling program) and she would often offer the bear especially when I would start crying.  Looking back, she perhaps didn’t realize why I was crying, but she was learning compassion, seeing that holding the bear would be better for me.

 

In the days that followed, her brother’s absence weighed heavier and heavier upon her.  The morning after he passed, she was demanding that we go get him out of the car, thinking he was just inside there.  When we were home, she would frantically search the house, ripping bedding off of the beds, looking in his crib, peeking into the bassinet that was still in the living room.  She would demand that we take her outside and prove that we hadn’t left him in the car.

 

This hadn’t been the first time that she had behaved this way, doing it once before when he’d been alive and well.  When Atti was a few months old, I took him with me to go shopping, leaving her with my husband so they could both sleep.  She awoke when we were still gone, and she wanted to know where her brother was, especially when my husband prompted her, asking her where he was.  She searched high and low around the house, not believing that he was with me until she had checked everywhere.  My husband told me of their little “game” when I got home, and it saddened me, but it assured me just how much she cared for her brother.

 

Seeing how frantically she searched in those weeks following his passing was heartbreaking.  We didn’t know what we could do; she didn’t believe us that he was gone.  She just couldn’t understand.

 

We didn’t have many pictures printed of him, but we’d been given a digital picture frame some time before, and so we put pictures of Atti, especially some that had both of them in the picture, and slowly, her searches became less frantic.  Instead, an obsession with that picture frame developed.  If she ever looked over and it was turned off, everything would be dropped until it was turned back on and she could see her brother again.  If it hadn’t been for this, I don’t think we would have had pictures up.  It was in the corner of the room, but whenever I looked at it, I would break down.  It comforted her, however, so there it stayed.

 

Other changes in behavior developed.  This girl that had been so happy to start sleeping in her toddler bed, especially now that it was in her own room, began to only want to sleep with us.  We took up sleeping in the living room, because the crib was still up in our bedroom and we couldn’t face being back there.  It was even worse when the crib was taken down and given to someone else; as if he’d never been there.  Worse than that (because we didn’t mind her sleeping with us) was her reaction to having to say goodbye to anyone.

 

When we had visitors (which truly were few and far between) or even the post man, she would have meltdowns over saying goodbye, refusing to say it or wave, and she would get worse when she realized they weren’t coming back into the house.  She wouldn’t say goodbye to anyone at her daycare, and if anyone said it to her, she would start crying.  It took her months to finally get to a place where she could say goodbye, but even now she doesn’t like it.

 

To her, all babies were Atti.  Babies in magazines, movies, on boxes; all were her brother, and we would have to tell her that they weren’t.  It was difficult to not get angry sometimes over this, and to be honest, there were times that we shouted at her for it, because we didn’t know how to handle the feelings that brought up.

 

The other worrisome behavior was perhaps the strangest, and it took us some time to understand.  Although she had always said “daddy” and “mommy” just fine, she started calling my husband “mommy” instead, calling us both “mommy”.  Reminding her that my husband was “daddy” would just make her upset.  And then, one day, we understood.  It wasn’t that she had suddenly forgotten that “daddy” was her daddy, but that she was noticing how upset we got when she spoke of Atti.  They were too similar for her, so she refused to say daddy.  It wasn’t until she began calling Atti by his name (Atticus) that she began to call my husband “daddy” again.  This didn’t happen until nearly six months after he’d passed away.

 

When I became pregnant again, I talked to her about having a new little brother or sister (but I hated whenever anyone asked her if she was excited that she was “going to be” a big sister, because she had never stopped being a big sister).  I asked her if the baby was a boy or a girl.  She told me the baby was a boy.  I asked her if she wanted a brother or a sister.  She told me she wanted a sister.  I told her that it was possible that she was going to have a little brother, and she got upset, insisting that she wanted a sister.  I asked her why, and she told me that it was because she already had a brother that she wanted a sister.

 

As time passed, we learned it was indeed another girl, so she has her little sister.  She is four and beginning school soon.  She doesn’t have the same relationship with her little sister than she did with Atticus, and that is hard for me.  For about the first month, she couldn’t stand the sound of her sister crying (though that’s not uncommon for any sibling when a new baby is in the house).  She still wants to care for her, and is now big enough to actually help us with her sister at times.

 

She speaks about Atticus often, asking about him.  She will tell people that she has a brother and sister, but follow it up with “Atticus is dead, sorry.” which shocks a great many people (as it did with us the first time she said it).  She tells us that Atticus sleeps in the bassinet and that he comes and plays with Chrys (her little sister) and her toys.  She asks if Atticus is still at the doctor’s, and sometimes asks when we take Chrys in for check-ups if she’s going to die too.  It’s heartbreaking to hear a child so young ask about things like that.  We explain that going to the doctor isn’t just for the sick (as she was with us for all but a handful of prenatal appointments during my pregnancies).

 

There are times where she still calls my husband “mommy” instead of “daddy” and she doesn’t normally want to sleep in her room, even with her new bed, but on most days, you wouldn’t think that her brother was missing.  Perhaps what helps her most in this is that she doesn’t quite yet understand that Atticus isn’t coming back, but then there are the times that she will cry for no reason and say how she misses Atticus, or she’ll try and comfort me by patting my head as I cry over thoughts and memories.

 

I feel I should also mention that shortly after my husband found Atti not breathing, I went to the back, and she followed soon after.  She initially thought that we were playing with him, thinking we were playing on the bed with him, as we tried to get him to respond and eventually beginning CPR.  We yelled for her to get out of the room, and she didn’t understand why.  A little over a month later, we had a BLS (basic life support) training in our house (as I needed that specific certification to apply to the hospital as a CNA), and she saw the training as well.  There are times that she “plays” with her dolls or stuffed animals as if she is giving them CPR, and more than once, she has attempted chest compressions on Chrys, not understanding that this could hurt her.

 

I don’t know how much she’ll remember of her brother as she grows older, but there are more pictures of him up around the house, and we do speak about him, so he will never be forgotten.

Monday, March 11, 2013

Some Time

Some time as passed since we lost Atti.  In a few days, it will be 15 months since he's been gone.  He would be turning two next month.  I haven't written in here as I would have liked, but I think of him everyday.  I see him in his sisters, even as they are so unique, and I can't help but wonder, what would he look like now, what would he be doing now?  As Easter approaches, I wonder again what life would be like if we had a little boy in our lives, as I wonder every day, but some days are harder, and make the questions rise even more earnestly.

Rose and Her Lily: Triple Giveaway for Lily's 3rd Birthday!

Rose and Her Lily: Triple Giveaway for Lily's 3rd Birthday!: In honor of Lily's 3rd Birthday in Heaven, I am hosting a triple giveaway! These are the items I am giving away: -One " Gone To...

Saturday, April 7, 2012

Faces of Loss, Faces of Hope

I found a site that shares experiences of pregnancy/infant loss.  I wrote an entry for Atticus, but the rest of the site it meaningful to read.

http://facesofloss.com/2012/04/5088.html#more-5088

Thursday, April 5, 2012

A Poem For Atti

My heart breaks
Again and again
Every time I see pictures of you
Because I don’t just
Want to see you
I want to touch your face
And hold you close.

I want to see life in your eyes
And a smile on your lips
To hear you laugh
To hear your cries
The weight of you in my arms
Is missing, just like your place
In my heart.

I feel like I’m forgetting
The smell of your hair
The sound of your voice
How it felt to hold you.
All I can remember
Is when I had to say goodbye to you
My precious baby boy.


Also, I found a page where I wrote about Atti.  It's a group for women that have experienced pregnancy/infant loss.  Each story is heartbreaking in its own way.

http://facesofloss.com/2012/04/5088.html

Saturday, January 14, 2012

People

Most people that I know have stopped talking to me and my family ever since my son died.  Friends have become distant and the topic of him has become taboo.  New people that we meet shy away.

I wanted to thank two mothers who didn't shy away.

I was at the mall with my daughter, letting her play in the play area.  Two mothers were talking and one was holding an infant.  I asked how old the infant was (5 months), and that mother, Karen, asked me which of the children were mine, and then asked a question I'd been dreading "Do you have any others?"

My response was automatic as tears came to my eyes.  "We had another."

So much could be taken from that simple word 'had'.  When They hear that, most people would get uncomfortable and move away.

Karen looked right at me and said, "Oh sweetie, I'm so sorry."

I was crying, but I was so happy that she didn't ignore me.  She and the other mother (Sandra), asked me what had happened, how old he was, what his name was.  I showed them the picture I'd taken a week before he died.  They told me how handsome he was.  It felt so wonderful to share him with others that didn't even know me, but I knew that it would feel better to share memories with those that had some of him as well.  I asked some friends and family to send me their memories of Atticus.  Two people responded.  Only two.

Sandra walked me to my car when we left, giving me a hug, and she told me that she understood the loneliness that comes after loss.  She had lost her husband three years ago, and had lost many friends because people just don't know what to say.

So, thank you, Karen and Sandra, and I wish for the best for your families.

And as for those that actually responded, thank you, for finding the words to share.  I know that others are thinking about Atticus, but you were brave enough to share them, and that means so very much.

Denial

I know why it is so hard to accept that he is gone; I denied that it was him when he was put in my arms.

He was too heavy, he didn't look like my sweet baby boy.  I couldn't get the images of this poor, dying baby in my arms, and the ones from him only two days earlier, smiling and laughing.  Even wearing one of our favorite outfits of his, it couldn't be him.  I couldn't be saying goodbye to him.  I think that's why I didn't cry when I said goodbye; I didn't know this child they had placed in my arms.

The next denial was his cause of death: SIDS.  Sudden Infant Death Syndrome.  Basically, a clinical term for "we don't know why the fuck this happened".  They could find no reason for this.  Could you imagine being able to use this in almost any other profession?

It couldn't be SIDS, because that means that there was no reason for him to have died.  That's how I felt, and how I still feel.  If he'd been sick, that was a reason.  If he'd had a birth defect that we hadn't know about, that was a reason.  If he'd gotten injured, that was a reason.  But SIDS, there is no reason.

And yet it happens so often.

In the United States, 2,500 infants will die of SIDS a year.  In the United States. 

Baby boys are more likely to die of SIDS, and the average age of death is between 2 and 4 months of age.  Add into this that SIDS deaths peak in late fall.

My son saw the doctor two days before we found him not breathing, and he'd been perfectly healthy.  Two days.

They've done research, trying to see if there is a connection between shots and SIDS.  I find it funny and sickening that none mention the flu vaccine.

What happens in late fall that would be different than any other time?  Well, infants over the age of six months are recommended to get the flu vaccine.  Atticus had never reacted to any other shots, but after the round he had that Friday, he did.  The only difference?  The flu vaccine.

Most that read this are probably thinking I'm going to freak out and say to not get the shots for your child.

I'm not going to do that. I'm just saying what I've observed.

Am I blaming the flu vaccine for my son's death?

No.  I'm just saying it should be looked into.  I do not believe it is the vaccine itself that causes the problems, but it has long been noticed that anyone with an egg allergy shouldn't get the flu shot, because that is where it is grown.  As far as we knew, Atticus had no allergies, but he was so young, we hadn't even really started him on anything yet, so we had and never will have, any way of noticing.

Shots are important to keep children healthy, and as much as I hate seeing children getting the shots, I know that the diseases would probably take them from their mother's arms, just like SIDS took my little man from mine.